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Quick Links

 -Caregiving Guides

 -TBI-Specific Caregiving

 -Service Member-Specific Caregiving

 -National Caregiving Organizations

 -General Resources

 -Spousal Caregiving

 -Respite

 -Webinars

 

 

 

 

Caregiving Guides

 

Family Caregiver Alliance

Part of the National Center on Caregiving, the Alliance offers comprehensive guidance and information regarding caregiving, public policy and research, fact sheets, and caregiving support. 

 

Caring Today

      Covers topics of reducing stress, working with family, planning for rm care, handling finances and legal issues, managing medications, and caregiver stories.

 

TBI-Specific Caregiving

TBI Guide

Free book, Traumatic Brain Injury Survival Guide, published by clinical neurologist Dr. Glen Johnson.   Includes sections concerning dealing with doctors, coping with common problems, emotional stages of recovery, returning to school and work.

 

TBI Model Systems Fact Sheets

Includes professionally-reviewed, downloadable fact sheets on a large variety of topics pertaining to brain injury. (También disponible en español)

 

Service Member-Specific Caregiving

 

TBI: A Guide for Caregivers of Service Members and Veterans     

Extensive (160 pages) PDF guide for caregivers of service members and veterans. 

 

VA Caregiver Support Services

Offers a variety of services designed specifically for caregivers of service members and veterans.

 

Traumatic Brain Injury A to Z

Offers a variety of Service Member TBI information, and a thorough guide to caregiving for vets living with brain injury.

 

Gift from Within

For survivors of Trauma experiencing PTSD.  Excellent Veterans section under "Trauma Support".

 

VA has established a National Caregiver Support Line for Caregivers of Veterans -- spouses, children, other family members and friends of Veterans as well as Veteran themselves – to provide a centralized location for information and support regarding providing care for a Veteran. The support line responders are licensed social workers who provide guidance, education on VA programs and benefits, information on community resources, and emotional support.    When a Caregiver or Veteran needs additional assistance or a connection to their local VA medical center, a referral is made to their Caregiver Support Coordinator.

To reach the VA Caregiver Support Line call toll free 1-855-260-3274.  Operating hours are Monday through Friday, 8 a.m. to 11 p.m., Eastern Standard Time and Saturday, 10:30 a.m. to 6 p.m., Eastern Standard Time.

 

National Caregiving Organizations

National Alliance for Caregiving

Provides reviews and ratings in Family Care Resource Connection for over 11,000 consumer-oriented caregiver resources such as websites, videos, books, and brochures.  Also provides an email list-serve on the topic of caregiving.

 

National Family Caregivers Association

Provides Tips and How To Guides including caregiver self-advocacy, care management techniques, choosing a nursing home, Improving Doctor Caregiver Communications, Share the Care checklist action plan, Telephone techniques for family caregivers, and the dealing with the stress of family caregiving.

 

Family Voices

Families, friends, and caregivers speaking out on behalf of children with special health care needs, addressing policy, managed care, advocacy-training for parents, publications available.

 

General Resources

Connectme Ohio

Am online directory of services designed to help people identify resources such as human services, information and referral, financial assistance, and other forms of aid and assistance throughout the United States. It is especially rich in resource information for seniors and their caregivers; people with disabilities and their caregivers; parents and families; and low income people.

 

Ohio Department of Aging

 

Spousal Caregivers

 

Well Spouse Association

Support for spousal caregivers.

 

 

 

Respite

ARCH National Respite Network and Resource Center

The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs, to help families locate respite and crisis care services in their communities, and to serve as a strong voice for respite in all forums. 

 

Lifespan Respite Tools

Lifespan Respite tools, including sample job descriptions, sample needs assessments, examples of Respite Registries, voucher guidance and sample tools, and performance and evaluation.

Webinars

BIAA Webinars

 

Mental Health Needs of Family Caregivers

Provided by the american Psychological association Office on Aging

 

Consumers are encouraged to evaluate each program and service to determine the quality and appropriateness based on a specific individual's needs.  The Brain Injury Association of Ohio does not recommend or endorse any particular professional, program, or service. 

BIAOH thanks members of Ohio’s TBI Family Caregivers Alliance for their assistance in developing this page, supported in part through Ohio’s federal TBI Implementation Grant, “Operation MAPS: Joining Forces”, (H21MC06771-04-1) awarded to the Ohio Rehabilitation Services Commission from the Health Resources and Services Administration (HRSA) within the U.S. Dept. of Health and Human Services.

 

 

 

 

 

 

 

 

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