National and Other States
The Brain Injury Association of Ohio
does not recommend or endorse any particular web site. Sites listed may
have informative material for understanding or coping with brain injury.
Using any of this material to diagnose anyone’s condition or to modify
health care treatment is not a proper use of site information.
Brain Tumor Association site
Association of America, the national organization’s website, with a
comprehensive listing of links to other sites
National Resource Center for Traumatic Brain
Injury, provides relevant, practical informational for professionals,
survivors and family members. Online catalog of resources.
Ohio Valley Center for Brain Injury Prevention and
Rehabilitation—conducts research on aspects of brain injury recovery and
rehabilitation, links to other TBI resources
The Perspectives Network, building public
awareness---a large number of reference tools and support information.
TPN’s primary focus is positive communication between persons with brain
injury, family members, caregivers, friends of persons with brain
injury, professionals who treat persons with brain injury, and community
members to create positive changes and enhance public awareness and
knowledge of acquired/traumatic brain injury.
Aphasia information, support groups, survivor
stories and links to other sites for additional information on aphasia,
National Aphasia Association, Facts, readings,
research, web links, personal accounts, software, clinics, and national
National Association of Rehabilitation
Professionals in the private sector. Website is listes as "Coming
Education & Transition
The National Database of Educational Resources on
Traumatic Brain Injury has a search engine for resources (books, videos,
websites) on many TBI-related topics, such as mild TBI, education,
The U.S. Department of
Education site has information for students, parents, teachers and
The U.S. Department of
Office of Special Education and Rehabilitative Services (OSERS).
OSERS is committed to improving results and outcomes for people with
disabilities of all ages.
Families and Advocates Partnership for Education (FAPE)
project is a strong partnership that aims to improve the educational
outcomes for children with disabilities. It links families, advocates,
and self-advocates to communicate the new focus of the Individuals with
Disabilities Education Act (IDEA).
The HEATH Resource Center of
The George Washington
Graduate School of Education and Human Development, is the national
clearinghouse on postsecondary education for individuals with
disabilities. Support from the U.S. Department of Education enables the
clearinghouse to serve as an information exchange about educational
support services, policies, procedures, adaptations, and opportunities
at American campuses, vocational-technical schools, and other
postsecondary training entities.
NICHCY is now the National Dissemination Center
for Children with Disabilities, funded by the U.S. Department of
Education, Office of Special Education Programs (OSEP). The site
contains material useful in discharge packets for
guiding families as they learn about the law and about access to
programs for kids.
Site for parents seeking information on all
aspects of special education and how to advocate effectively, national
list of Parent Training Information Centers
Public Broadcasting Service, program information
and resources for further education on various topics, frequently
addressing social and medical issues relevant to brain injury.
Rhode Island TBI Resource Center, excellent source
for students, teachers
University of Kansas, Special Education, good site
for educators, re-entry issues, educational programs, etc.
Ohio Coalition for the Education of Children with
Disabilities; also CECD offices of other states.
University of Alabama, Birmingham, site for TBI
Family and Caregiver
Family Caregiver Alliance, information resource on
long term care.
Coma Recovery Association, Inc. provides advocacy,
general information, networking, referrals, support facilities database,
Families, friends, and caregivers speaking out on
behalf of children with special health care needs, addressing policy,
managed care, advocacy-training for parents, publications available.
Federal Programs & National Resources
Centers for Disease Control and Prevention
CDC's Injury Center - lists their latest news and
Centers for Medicare and Medicaid Services
National Dissemination Center for Children with
Disabilities - a central source of information on: disabilities in
infants, toddlers, children, and youth, IDEA, which is the law
authorizing special education, No Child Left Behind (as it relates to
children with disabilities), and research-based information on effective
National Institute of Health, health information
publications, clinical trials, health hot lines, A to Z subject index
National Institute on Neurological Disorders &
Stroke – "Stroke Connection" Stroke support clearinghouse: 800-533-6321
The National Institute on Disability and
Rehabilitation Research (NIDRR) provides leadership and support for a
comprehensive program of research related to the rehabilitation of
individuals with disabilities. Programmatic efforts are aimed at
improving the lives of individuals with disabilities from birth through
The Traumatic Brain Injury Model System (TBIMS)
program was created and funded by the National Institute on Disability
and Rehabilitation Research (NIDRR) in 1987 to demonstrate the benefits
of a coordinated system of neurotrauma and rehabilitation care and
conduct innovative research on all aspects of care for those who sustain
traumatic brain injuries.
Traumatic Brain Injury National Data Center at
Kessler Medical Rehabilitation Research
and Education Center is the coordinating center for the research and
dissemination efforts of the Traumatic Brain Injury Model Systems (TBIMS)
Social Security Administration, SSI and links to
other websites on disabilities, etc.
Long Term Adjustment and
Lifestyle, recreation, personal participation in
the arts, disability awareness training and consulting, and support
resources for all types of disabilities; 6 million links.
National Rehabilitation Association provides
The NIDRR Traumatic Brain Injury Model system of
American College of Neuorpsychopharmacology,
behavior pharmacology, brain imaging, and research and education in
neuropsychopharmacology and other related fields.
Brain Trauma Foundation, guidelines for TBI trauma
treatment, lawyers and many links to other websites regarding TBI.
Dana Alliance for Brain Initiatives, Brain
Connections—online source for information on brain diseases and
National Neurotrauma Society -- professional
neurological sciences organization with useful links
EEG News and Information -- Diagnostic technology,
quantitative EEG, biofeedback resources
National Clearinghouse for Alcohol and Drug
Kessler Medical Rehabilitation Research and
Education Corporation, TBI research, including the TBI Model System for
The Whole Brain Atlas, brain imaging with patient
Genesee-Fingers Lakes Regional TBI Center, school
system located in New York, Child Specific services to school reentry,
educational consultation and school community resources coordination,
links to hospitals, rehabilitation centers, etc.
National Library of Medicine and Medline - 14
million citations for biomedical articles dating back to the 1950's.
Brain Aneurysm Foundation.
Hydrocephalus Association - Offers support,
education, and advocacy for families and professionals dealing with the
complexities of hydrocephalus.
University of Pittsburgh Medical Center--Brain
Trauma Research Center
National Institute of Health, health information
publications, clinical trials, health hot lines, A to Z subject index,
Healthfund of Minnesota, member agencies to BIA of
TBI and Spinal Cord Injury Projects Homepage,
excellent link to other TBI and Spinal Cord Injury sites.
The Virtual Hospital (at the University of Iowa)
--Virtual Hospital page with a brain injury guide
Virtual Naval Hospital, authoritative information
and links on many different medical issues.
World Health Organization
Ohio Programs and Resources
(also listed in Local links)
ADA Ohio Home Page provides information, technical
assistance and training about ADA.
HansonHouse Traumatic Brain Injury Clubhouse is
located in Berea, Ohio. The TBI (traumatic brain injury) Clubhouse
is a supportive network of members and volunteers who participate in
social, recreational and work-oriented programs for the purpose of using
and developing practical and functional living skills.
The Ohio Department of Education, Office for
Exceptional Children's web site includes the 2002
Operating Standards for Ohio's Schools Serving Children with
Ohio Valley Center for Brain Injury Prevention and Rehabilitation
conducts research, provides education and develops programs to improve
the quality of life of persons who experience traumatic brain injury.
The Center serves individuals, families and professionals throughout
North America. The site includes research on
aspects of brain injury recovery and rehabilitation, links to other TBI resources,
Provides information on
through utilities (including screening tools and guides), research news
ORCLISH is a statewide federally funded project
under the direction of the Ohio Department of Education, Division of
Special Education. ORCLISH works in cooperation with Ohio's sixteen
Special Education Regional Resource Centers (SERRCs). ORCLISH
serves students with low incidence and severe disabilities, including
traumatic brain injury. Information is available on assistive
devices, visual and other disability resources.
State of Ohio, government resources, departments,
services, and other information for citizens
Office of Medicaid, state of Ohio
Ohio Developmental Disabilities
Council provides planning and advocacy regarding inclusion for people
Ohio Department of Job and Family
Ohio Legal Rights Service
Rights Advocacy/Legal Issues
Family and Advocates Partnership for Education (FAPE)—formed
to deliver consistent and accurate IDEA information
National Council on Disability—lots of information
on ADA, civil rights etc.
Safety and Injury
Bicycle Helmet Safety Institute
National Highway Traffic Safety Administration
provides traffic safety tips, helmet use laws, seat belt laws, and crash
Preparing Your Home for a Baby
Guide provided by the Center for Injury
Research & Prevention
National Safe Kids Campaign