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The Brain Injury Association of Ohio does not recommend or endorse any particular web site. Sites listed may have informative material for understanding or coping with brain injury. Using any of this material to diagnose anyone’s condition or to modify health care treatment is not a proper use of site information.

Content list:

General Links

Cognitive Rehabilitation

Education & Transition

Family & Caregiver

Federal Programs & National Resources

Long Term Adjustment and Management/Life Management

Medical Resources

Ohio Programs & Resources (also listed in Local links)

Rights Advocacy / Legal Issues

Safety & Injury Prevention

 

General Links

http://www.abta.org/

American Brain Tumor Association site

www.biausa.org

Brain Injury Association of America, the national organization’s website, with a comprehensive listing of links to other sites

www.neuro.pmr.vcu.edu

National Resource Center for Traumatic Brain Injury, provides relevant, practical informational for professionals, survivors and family members. Online catalog of resources.

www.ohiovalley.org

Ohio Valley Center for Brain Injury Prevention and Rehabilitation—conducts research on aspects of brain injury recovery and rehabilitation, links to other TBI resources

www.tbi.org

The Perspectives Network, building public awareness---a large number of reference tools and support information. TPN’s primary focus is positive communication between persons with brain injury, family members, caregivers, friends of persons with brain injury, professionals who treat persons with brain injury, and community members to create positive changes and enhance public awareness and knowledge of acquired/traumatic brain injury.

Cognitive Rehabilitation

www.aphasia.net

Aphasia information, support groups, survivor stories and links to other sites for additional information on aphasia, communication skill-building

www.aphasia.org

National Aphasia Association, Facts, readings, research, web links, personal accounts, software, clinics, and national conference.

www.narpps.org

National Association of Rehabilitation Professionals in the private sector.  Website is listes as "Coming Soon!"

 

Education & Transition

www.braininjuryresearch.org/tbi/b_queryItem.asp

The National Database of Educational Resources on Traumatic Brain Injury has a search engine for resources (books, videos, websites) on many TBI-related topics, such as mild TBI, education, symptoms, etc.

www.ed.gov

The U.S. Department of Education site has information for students, parents, teachers and administrators.

www.ed.gov/about/offices/list/osers

The U.S. Department of Education's Office of Special Education and Rehabilitative Services (OSERS).  OSERS is committed to improving results and outcomes for people with disabilities of all ages.

www.fape.org

 The Families and Advocates Partnership for Education (FAPE) project is a strong partnership that aims to improve the educational outcomes for children with disabilities. It links families, advocates, and self-advocates to communicate the new focus of the Individuals with Disabilities Education Act (IDEA).

www.heath.gwu.edu

The HEATH Resource Center of The George Washington University, Graduate School of Education and Human Development, is the national clearinghouse on postsecondary education for individuals with disabilities. Support from the U.S. Department of Education enables the clearinghouse to serve as an information exchange about educational support services, policies, procedures, adaptations, and opportunities at American campuses, vocational-technical schools, and other postsecondary training entities.
 

www.nichcy.org

NICHCY is now the National Dissemination Center for Children with Disabilities, funded by the U.S. Department of Education, Office of Special Education Programs (OSEP).  The site contains material useful in discharge packets for guiding families as they learn about the law and about access to programs for kids.


www.pacer.org

Site for parents seeking information on all aspects of special education and how to advocate effectively, national list of Parent Training Information Centers

www.pbs.org

Public Broadcasting Service, program information and resources for further education on various topics, frequently addressing social and medical issues relevant to brain injury.

www.providence.edu

Rhode Island TBI Resource Center, excellent source for students, teachers

www.soe.ku.edu/sped

University of Kansas, Special Education, good site for educators, re-entry issues, educational programs, etc.

www.taalliance.org

Ohio Coalition for the Education of Children with Disabilities; also CECD offices of other states.

www.uab.edu/tbi

University of Alabama, Birmingham, site for TBI resources.

 

Family and Caregiver

www.caregiver.org

Family Caregiver Alliance, information resource on long term care.

www.comarecovery.org

Coma Recovery Association, Inc. provides advocacy, general information, networking, referrals, support facilities database, links, etc.

www.familyvoices.org

Families, friends, and caregivers speaking out on behalf of children with special health care needs, addressing policy, managed care, advocacy-training for parents, publications available.

 

Federal Programs & National Resources

www.cdc.gov

Centers for Disease Control and Prevention

www.cdc.gov/injury

CDC's Injury Center - lists their latest news and information

www.cms.hhs.gov/medicaid

Centers for Medicare and Medicaid Services

www.nichcy.org

National Dissemination Center for Children with Disabilities - a central source of information on: disabilities in infants, toddlers, children, and youth, IDEA, which is the law authorizing special education, No Child Left Behind (as it relates to children with disabilities), and research-based information on effective educational practices.

www.nih.gov

National Institute of Health, health information publications, clinical trials, health hot lines, A to Z subject index etc.

www.ninds.nih.gov

National Institute on Neurological Disorders & Stroke – "Stroke Connection" Stroke support clearinghouse: 800-533-6321

http://www.ed.gov/about/offices/list/osers/nidrr

The National Institute on Disability and Rehabilitation Research (NIDRR) provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities.  Programmatic efforts are aimed at improving the lives of individuals with disabilities from birth through adulthood.

http://www.tbindc.org/main_centers.php

The Traumatic Brain Injury Model System (TBIMS) program was created and funded by the National Institute on Disability and Rehabilitation Research (NIDRR) in 1987 to demonstrate the benefits of a coordinated system of neurotrauma and rehabilitation care and conduct innovative research on all aspects of care for those who sustain traumatic brain injuries.

www.tbindc.org

Traumatic Brain Injury National Data Center at Kessler Medical Rehabilitation Research and Education Center is the coordinating center for the research and dissemination efforts of the Traumatic Brain Injury Model Systems (TBIMS) program.

www.ssa.gov

Social Security Administration, SSI and links to other websites on disabilities, etc.

 

Long Term Adjustment and Management/Life Management

www.halftheplanet.org

Lifestyle, recreation, personal participation in the arts, disability awareness training and consulting, and support resources for all types of disabilities; 6 million links.

www.nationalrehab.org

National Rehabilitation Association provides legislation information.

www.tbi.pmr.vcu.edu

The NIDRR Traumatic Brain Injury Model system of Rehabilitation Care

 

Medical

www.acnp.org

American College of Neuorpsychopharmacology, behavior pharmacology, brain imaging, and research and education in neuropsychopharmacology and other related fields.

www.aitken.org

Brain Trauma Foundation, guidelines for TBI trauma treatment, lawyers and many links to other websites regarding TBI.

www.dana.org

Dana Alliance for Brain Initiatives, Brain Connections—online source for information on brain diseases and disorders

www.edc.gsph.pitt.edu/neurotrauma

National Neurotrauma Society -- professional neurological sciences organization with useful links

www.eegnews.net

EEG News and Information -- Diagnostic technology, quantitative EEG, biofeedback resources

www.health.org

National Clearinghouse for Alcohol and Drug Information

www.kmrrec.org

Kessler Medical Rehabilitation Research and Education Corporation, TBI research, including the TBI Model System for New Jersy.

www.med.harvard.edu/AANLIB/horne.html

The Whole Brain Atlas, brain imaging with patient history.

www.monroe.edu/Services/TBI_Center.html

Genesee-Fingers Lakes Regional TBI Center, school system located in New York, Child Specific services to school reentry, educational consultation and school community resources coordination, links to hospitals, rehabilitation centers, etc.

www.ncbi.nlm.nih.gov/PubMed/

National Library of Medicine and Medline - 14 million citations for biomedical articles dating back to the 1950's.

www.neurosurgery.mgh.harvard.edu/baf

Brain Aneurysm Foundation.

www.neurosurgery.mgh.harvard.edu/ha

Hydrocephalus Association - Offers support, education, and advocacy for families and professionals dealing with the complexities of hydrocephalus.

www.neurosurgery.pitt.edu

University of Pittsburgh Medical Center--Brain Trauma Research Center

www.nih.gov

National Institute of Health, health information publications, clinical trials, health hot lines, A to Z subject index, etc.

www.thehealthfund.org

Healthfund of Minnesota, member agencies to BIA of Minnesota.

www.tbi-sci.org

TBI and Spinal Cord Injury Projects Homepage, excellent link to other TBI and Spinal Cord Injury sites.

www.vh.org

The Virtual Hospital (at the University of Iowa)

---www vh.org/Patients/IHB/Neuro/BrainInjury/00TableOfContents --Virtual Hospital page with a brain injury guide

www.vnh.org

Virtual Naval Hospital, authoritative information and links on many different medical issues.

www.who.int

World Health Organization

 

Ohio Programs and Resources (also listed in Local links)

www.ada-ohio.org

ADA Ohio Home Page provides information, technical assistance and training about ADA.

www.hansontbiclubhouse.org

HansonHouse Traumatic Brain Injury Clubhouse is located in Berea, Ohio.  The TBI (traumatic brain injury) Clubhouse is a supportive network of members and volunteers who participate in social, recreational and work-oriented programs for the purpose of using and developing practical and functional living skills.

www.ode.state.oh.us/exceptional_children

The Ohio Department of Education, Office for Exceptional Children's web site includes the 2002 Operating Standards for Ohio's Schools Serving Children with Disabilities

www.ohiovalley.org

Ohio Valley Center for Brain Injury Prevention and Rehabilitation
conducts research, provides education and develops programs to improve the quality of life of persons who experience traumatic brain injury. The Center serves individuals, families and professionals throughout North America.  The site includes research on aspects of brain injury recovery and rehabilitation, links to other TBI resources, including:

www.ohiovalley.org/abuse

Provides information on substance abuse through utilities (including screening tools and guides), research news and articles.

www.orclish.net

ORCLISH is a statewide federally funded project under the direction of the Ohio Department of Education, Division of Special Education. ORCLISH works in cooperation with Ohio's sixteen Special Education Regional Resource Centers (SERRCs).  ORCLISH serves students with low incidence and severe disabilities, including traumatic brain injury.  Information is available on assistive devices, visual and other disability resources.

www.state.oh.us

State of Ohio, government resources, departments, services, and other information for citizens

www.state.oh.us/odhs/medicaid/index.stm

Office of Medicaid, state of Ohio

www.state.oh.us/ohioddc

Ohio Developmental Disabilities Council provides planning and advocacy regarding inclusion for people with disabilities.

http://jfs.ohio.gov/ohp

Ohio Department of Job and Family Services

www.state.oh.us/olrs/ 

Ohio Legal Rights Service

 

Rights Advocacy/Legal Issues

www.fape.org

Family and Advocates Partnership for Education (FAPE)—formed to deliver consistent and accurate IDEA information

www.ncd.gov

National Council on Disability—lots of information on ADA, civil rights etc.

 

Safety and Injury Prevention

www.bhsi.org

Bicycle Helmet Safety Institute

www.nhtsa.dot.gov

National Highway Traffic Safety Administration provides traffic safety tips, helmet use laws, seat belt laws, and crash statistics, etc.

Preparing Your Home for a Baby

Guide provided by the Center for Injury Research & Prevention

www.safekids.org

National Safe Kids Campaign

 

Creating a Better Future Through brain injury prevention, research, education and advocacy.

 

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