

 |
F.R.E.D.
(Frequently Requested Educational Documents)
These documents are available to anyone with an interest in brain
injury. Please call our toll-free
Helpline (1-866-644-6242) or contact your
CSN Coordinator for
assistance. We will be happy to help you select the documents
which will be most helpful for you.
Click on a category to view a list of documents
which are available.
ADVOCACY
AGING & BRAIN INJURY
ALTERNATIVE
THERAPIES (Cranio-sacral,
chiropractic, etc.)
ASSISTANCE DOGS
ASSISTIVE TECHNOLOGY (communication,
mobility, Medical/Adaptive Equipment Suppliers)
BEHAVIOR ISSUES
BIBLIOGRAPHIES
CAREGIVER (Training caregivers, Respite Care)
COMA
COMMUNICATION (communicative disorders,
language impairments)
COMPUTERS
DIET AND LIFESTYLE
EDUCATION (Pediatric & Adult, Transition &
Postsecondary education issues, Behavior, the IEP)
FACILITY EVALUATION
FAMILY ISSUES (special needs of families, family
education & support, what to expect)
FINANCIAL
FOREIGN LANGUAGE RESOURCES
GLOSSARIES
(medical and other
specialized terms related to brain injury)
HOME CARE
HOUSING
INSURANCE & MANAGED CARE
LEGAL & ETHICAL ISSUES (guardianship, POA,
courts, legal representation, estate issues)
LEGISLATION (public policy, legislative
advocacy related to TBI & disability)
MEDICAID
MEDICAL (Brain disorders & treatments, non-BI
problems, related diagnostics)
MEDICARE/SSA (Social Security
Administration resources,
government health programs)
MENTAL HEALTH (psychiatry & brain injury, counseling & brain injury - technical
and service information)
MILD BRAIN INJURY (Concussion, post-concussive
syndrome, misdiagnoses)
NEURO- AND REHAB PSYCHOLOGY
PAIN MANAGEMENT
PEDIATRIC BRAIN INJURY
PEOPLE FIRST
RECREATION (camps, travel & leisure activities)
REHABILITATION
SEIZURE DISORDER/EPILEPSY
SEXUALITY
SPORTS AND BRAIN INJURY
STATISTICS
STRESS
SUBSTANCE ABUSE
SUPPORT GROUPS
SURVIVOR
TBI (General)
TRANSPORTATION
VISION AND HEARING
VOCATIONAL
(Vocational rehab, workers comp, work incentives)
------
ADVOCACY
- Advocacy for the TBI Professional (1991, 4 pp.,
from RRTC on Severe TBI, on developing an advocacy perspective for
effective individual and systems advocacy)
- Advocacy Statements Regarding Persons with
Brain Injury (1995, one page, 9-point list of rights of individuals
with brain injury to services and types of outcomes)
- Becoming an Effective Advocate (1994, in NARIC
Quarterly: a two-page article on advocacy, plus two pages describing
reports on TBI rehab published in 1992)
- Hints for the Advocate (1992, one page sheet on
what keeps advocates focused and persistent)
------
AGING & BRAIN INJURY
- The Effect of Brain Injury and the Aging
Process, by David Strauss, PhD
- The Effects of Aging on People with Brain
Injury
------
ALTERNATIVE THERAPIES
- Alternative Therapies (1999, 5pp.,
Health and Medicine, Vol. 5, No. 1)
- Cranial Osteopathy
- Cranial-Sacral Therapy vs. Cranial Osteopathy:
Differences Divide
- Energy System and Self Help Strategies (Brenda
Asterino, energy practitioner, healing light method)
- A Family Guide to Alternative Therapies
- Functional Visual Field
- Psychotherapy and Qigong: Partners in Healing
Anxiety (1998, 5pp., Michael Mayer, Ph.D., Third Edition)
- Qigong Exercises (1997, 7pp.,
Knight-Ridder/Tribune News Service)
- What is Syntonics? (information on optometric
phototherapy – downloaded 7/8/03)
------
ASSISTANCE DOGS
- Canine Companions
- Maximizing Independence with the help of an
assistance dog, “assistance dogs can...” by Tina Mooney, et al, (2002)
- Maximizing Independence with the help of an
assistance dog, Pet vs. Assistance dog, etc. by Tina Mooney, et al
(2002 BIAOH Conference presentation slides-handout)
------
ASSISTIVE TECHNOLOGY
- Assistive Technology for Individuals with TBI
(no date, one page outline of AT uses for motor, cognitive, sensory,
and communication difficulty)
- Assistive Technology for Persons with TBI
(1992, 6 pp.)
------
BEHAVIOR ISSUES
- 10 Ways to Support A Person with Challenging
Behavior
- Behavior Problems Following Head Injury
- Caregiving & Behavioral Disabilities
- Head Injury & Behavior Management
- Impaired Cognition & Behavior Problems: Double
Trouble, by Carolyn Rocchio (2 pp., in Family News and Views)
- Practical Advice for Behavioral Management, by
Michael Howard, PhD
- When Unexpected Problems Develop after Brain
Injury by Carolyn Rocchio (1997, 2 pp.)
------
BIBLIOGRAPHIES
- Bibliography Resources (BIAA Website,
2000)
- Miscellaneous -- bibliographies
------
CAREGIVER
- Caregivers’ Action Plan (2 pp., from 1984
guidebook Family Caregivers and Dependent Elderly, sample chart
and explanation for completing the plan to organize use of resources,
two gerontologists as authors)
- Caregivers Experience Heavy Emotional Toll (no
date, 2 pp., from Today’s Columbus Woman)
- How to Maintain a Strong Immune System, by
Carolyn Rocchio (1995, 1 page)
- Strategies for Families & Caregivers, Judith
Falconer (no date, 3 pp.)
- Strategies to Prevent Caregiver Fatigue (1993,
2 pp., from Headlines)
- Treating Caregiver Depression (1993, 1 page,
from Headlines)
------
COMA
- Coma: Also Known as Vegetative State
(downloaded from
www.ecureme.com/emyhealth/data/Coma.asp, August 2003)
- Coma Guide for Caregivers (from Delaware Health
and Social Services, division of Services for Aging and Adults with
Physical Disabilities)
- Straight Talk About Coma by Carolyn Rocchio
(1996, 2 pp.)
- What Is Coma Stimulation? How Effective is this
Unique Therapeutic Technique?… by Nathan Zasler, MD (19??, from
Brain Injury Source, 2 pp.)
- What Does Coma Mean? (1995, 4 pp., in
HeadsUP, from the HealthSouth Rehab Hospital of Utah)
- When Your Child is in a Coma (Tip Card, Lash &
Associates)
------
COMMUNICATION
- Augmentative Communication (Tip Card, Lash &
Associates)
- Aphasia (1993, 2 pp., description of types and
symptoms, associated emotional and medical problems, diagnosing
aphasia, prognosis and treatments - produced by Learning Services
Corporation)
- How Communication Changes Over Time (Tip Card,
Lash & Associates)
- Strategies for Word Recall (1 page, no date,
brief 13-point list of suggestions)
- Subtle Changes in Communication After Traumatic
Brain Injury (1 p., 1994, from RehabUpdate)
------
COMPUTERS
- Software Update 1998: Commercial
Programs Useful in Cognitive Retraining (4 pp., J Head Trauma Rehabil,
1998, 13(5))
- Websites with Brain Injury-Related
Information (2003)
------
DIET AND LIFESTYLE
- Eating Disorders (1993 NIMH pamphlet, free of
copyright restrictions)
------
EDUCATION
- Adolescent and Young Adult
- Assistive Technology for Reading & Writing (Tip
Card, Lash & Associates)
- Back to School After Brain Injury by Carolyn
Rocchio (1997, 2 pp., Family News and Views)
- Back to School after a Mild Brain Injury or
Concussion (Tip Card, Lash & Associates)
- Back to School after a Moderate to Severe Brain
Injury (Tip Card, Lash & Associates)
Basics for Parents: Your child’s evaluation (1999, from NICHCY,
four pages, facts on determining needs for school services, some IDEA
information, steps in the process, development of the educational
program)
- Behavior, Discipline & Special Education
- Best Practices Manuals for School Re-Entry
(list updated Dec 2000, 2 pp., bibliographic information for several
well-regarded manuals)
- Bing Bang Bong - When Your Child Has a TBI (Tip
Card, Lash & Associates)
- Children & Youth with Emotional & Behavioral
Disorders
- Creating Options 2004: A Resource on Financial
Aid for Students with Disabilities, 2004 Edition. (19 pages, the HEATH
Resource Center, Washington, DC,
www.heath.gwu.edu)
- Creating Options: A Resource on Financial Aid
for Students with Disabilities, 2003 Edition. (19 pages, from the
HEATH Resource Center, Washington, DC)
- Educating Students with TBI
- Education and the Traumatically Brain Injured:
Rights, Protections,
- Educational Modifications for Students
- Educational Needs Following Head Injury
- Gathering Information When A Student Has TBI
(Article/Information Sheet, Lash & Associates)
- Getting Ready for College: advising High School
Students with Learning Disabilities
- The Head Injured Student Returns to School
- Head Injured Survivor on Campus: Issues and
Resources
- Help! My Child is Ready to Return to School
- IEP Packet: Sequence, Needed Transitions
- Interventions for Chronic Behavior Problems
- Learning about Special Education, by Marilyn
Lash, M.S.W., (Lash & Associates, Information sheet/Newsletter
article)
- Modifications for Students
- Myths and Facts When Your Child has a Brain
Injury (Tip Card, Lash & Associates)
- Neuropsychology and School: Understanding how a
BI affects a student’s behavior (1998), by M. Lash & R. Savage (Tip
Card, Lash & Associates)
- Parents Have The Right To Complain (1994, 2pp.,
complaint process steps, from FORUM, Ohio Coalition for the Education
of Handicapped Children)
- Planning for Inclusion (NICHCY)
- Planning In-School Transitions for the Students
with Brain Injury (Tip Card, Lash & Associates)
- Questions often asked by parents about special
education services, NICHCY Briefing Paper (1999) (eligibility
for special education, IEP contents and process, evaluation
procedures, parent resources)
- Rehab Update: Special Issue on Families &
Education
- Research into Practice: Serving Students with
TBI
- Rising to the Discipline Challenge
- School Re-entry Following Head Injury: Managing
the Transition From Hospital To School
- School Re-Entry for Students with Head Injury:
Stepping Stones and Stumbling Blocks
- Serving Students with TBI: A New Challenge
- Special Education IEP Checklist (Tip Card, Lash
& Associates)
- The Student with a Brain Injury: Achieving
Goals for Higher Education (2001, 16 pages, from Heath Resource
Center)
- Students with Disabilities Preparing for
Postsecondary Education: Knowing Your Rights & Responsibilities (July
2002) (US Dept of Education, Office for Civil Rights)
- Teaching Strategies for Students with BI, by J.
Tyler, J. Blosser, R. DePompei (Tip Card, Lash & Associates)
- Therapies in School (Tip Card, Lash &
Associates)
- Transitioning Pediatric Patients into
Educational Systems
- Young Adults with Brain Injury and College, by
Jen Bunch, JD (5 pp., TBI Challenge, Vol. 4, No. 2, 2000)
------
FACILITY EVALUATION
- A Guide to Selecting and Monitoring Brain Injury
Rehabilitation Services (downloaded from BIAA website August 7, 2002)
- What to Look for When Selecting a Rehabilitation Facility
------
FAMILY ISSUES
- Brothers & Sisters: Brain Injury is a Family
Affair, Carolyn Rocchio (2 pp., 1996)
- Coping with a Husband's Head Trauma (1989, 2
pp., written by a spouse)
- The Effect of Brain Injury on Marriage (4 pp.,
from Headlines, May/June 1993)
- Families’ Right to Choose (2 pp., 1990, by
Kenny Hosack, Director of Family Advocacy, Learning Services Corp., on
how to select an appropriate rehab program)
- Families with Head Injured Members: A Personal
Account, by Paul Spanbock, M.Ed. (2 pp., 1994)
- The Family as Case Managers, Corwin Boake, PhD
(2 pp., 1989, author is clinical director, Behavioral Medicine, Dallas
Rehabilitation Institute)
- The Family Perspective on Managed Care, Carolyn
Rocchio (3 pp., no date, from the journal Brain Injury Source)
- From My Family To Yours, by Mark Mitchell (12
pp., 1993, many points for families and caregivers to follow)
- From One Family Member to Another (2 pp., no
date, a parent’s account of her son’s and her family’s adjustment to
injury five years after his TBI)
- Fundamental Principles for Family and Friends
(one page, 1993, Reprinted with permission)
- Head Injuries and Family Coping, Mark Mitchell
(7 pp., no date, developing coping perspectives, maintaining the rehab
process, BI characteristics)
- Head Injuries Happen to Families, Judith
Falconer, PhD (3 pp., 1990)
- Head Injury and the Family Environment, by Mark
Mitchell (one page, no date, on responding effectively to a survivor’s
recovery process needs)
- Helpful Suggestions in Relating to your Head
Injured Family Member (3 pp., 1984, NHIF, reproduced with permission
of the Institute of Physical Medicine and Rehabilitation, Peoria, IL)
- Helping Brothers and Sisters when a Child Has a
Brain Injury (Tip Card, Lash & Associates)
- Helping Families Cope when a Child has a Brain
Injury (Tip Card, Lash & Associates)
- How TBI Affects The Family…, Amy Herstein
Gervasio, PhD (2 pp., 1993, reprint from TBI Transmit, IHIA)
- Information & Preparation: The Key to Quality
of Life after Brain Injury, Carolyn Rocchio (2 pp., 1996)
- Living With A Frontal Lobe Brain Damaged
Survivor (2 pp., 1993, by a family member of a head injury survivor)
- Living with the Characterologically Altered
Brain Injured Patient, by Muriel Lezak (10 pp., 1978, common family
problems, counseling options, six key problem areas and the family
response)
- The Positive Approach to Coping, Carolyn
Rocchio (2 pp., 1997)
- Profiles of the Other Child - A Sibling Guide
for Parents, F. McCaffrey & T. Fish (8 pp., no date, Nisonger Center
resource: how to explain disability to and treat the sibling of a
child with a disability)
- Rising Above the Loss and Into the Future,
Carolyn Rocchio (2 pp., TPN Magazine, 1998)
- Safe Driving after Brain Injury, Carolyn
Rocchio (2 pp., 1998)
- Siblings of Children with Brain Injuries (3 pp.
article in Rehab Update, Winter 1997)
- Sisters & Brothers, Brothers and Sisters in
Family Affected by TBI (16 pp., 1991, parental views of family needs,
possible interventions)
- Spiritual Life After Brain Injury, Joseph E.
Kennell, PhD (4 pp., 1994, presented at the W. Virginia HIF
conference)
- Stages of Recovery (6 pp., no date, treatment
approaches and suggestions for families in their response at the
various Ranchos levels of cognitive function)
- Using Community Mental Health Centers, Carolyn
Rocchio (2 pp., 1999, Family News and Views)
- Viewpoints: Issues in Brain Injury
Rehabilitation, Parenting After A Brain Injury, Carolyn Rocchio (4
pp., Fall 1995, newsletter from Tangram, includes three other
articles)
- Where Do We Go From Here? by Carolyn Rocchio (2
pp., 1997)
- You are Not Alone (3 pp., no date, adapted from
Patty Smith’s article You are not Alone…, an NHIF Reprint)
------
FINANCIAL ISSUES
- Families Access to Funding (1990, 1
page, shares steps to cracking the funding maze)
- Financial & Legal Resources (1989, 11
pp., reprinted by New Medico Head Injury System from the Resource
Journal of the Kentucky Head Injury Assn.)
- The High Cost of a Bump on the Head:
(no date, 2 pp., detection , job modification, prevention are key
components of worksite head injury programs)
------
FOREIGN LANGUAGE RESOURCES
- Brain Injury and You (in Spanish)
- El Trauma Cerebral (2 pp., no date, pdf from
www.nashia.org)
- Hechos Sobre El Trauma Cerebral: Servicios de
Emergencia Medica (2pp., fact sheet from
www.nashia.org)
- Spanish Resources
------
GLOSSARIES
- Glossary - General
- TBI terminology
------
HOME CARE
- Checklist for Planning Home Visit
- Some Ideas to Keep in Mind When With a Brain
Injured Person (Craig Hospital)
------
HOUSING
- A Guide to Home Ownership for People
with Disabilities (no date, four pages, published by Ohio Assn. Of
County Boards of MRDD)
- Housing Issues for People with
Disabilities
- Supported Living Choices for Survivors
(no date, one page description of the goals of a supported living
program, author works in supported living for a post acute rehab
program in California)
------
INSURANCE & MANAGED CARE
- IIssues in the Reimbursement of Brain Injury
Services (1p., Headlights, Hillside Rehabilitation Hospital)
- How To File A Consumer Complaint (Ohio Dept of
Insurance)
- What Do You Mean It's Not Covered (1998, 2 pp.,
Exceptional Parent, Tricia & Calvin Luker)
- What Do You Mean It's Not Covered: Unscrambling
the Insurance Maze (1995, 1p., Family News and Views, Carolyn
Rocchio)
------
LEGAL & ETHICAL ISSUES
- Attorney List
- Durable Power of Attorney: A Guide to Ohio’s
Durable Power of Attorney & Ohio’s Living Will (material provided by
Ohio State Medical Assn., 1991, and Ohio Legal Rights Service, 1999)
- Go Get Your Head Examined: Effective
Representation of Brain Injured Clients, by J. Falconer and E.
Tercilla (no date, 3 pp., by two clinical psychologists)
- Guardianship (Advocacy & Protective Services,
Inc. - APSI)
- Guardianship in Ohio, by David A. Zwyer, Esq.
(March 2003, 26 pages, published by the Ohio Developmental
Disabilities Council, downloaded from
www.state.oh.us/ddc)
- In Support of Closed Head Injury Victims (no
date, collection of three short articles by attorney Charles Simkins:
What an attorney should know before entrusted with your closed head
injury case, When it describes a brain injury, the word mild is
serious, and Case study – Mild closed head injury)
- Lawyer Interview Sheet (no date, one page list
of eight questions)
- Legal Issues (1988, four page introductory
information on legal issues faced by survivors and their families from
NHIF)
- Legal Issues when Teenagers become Adults after
Brain Injury (Tip Card, Lash and Associates)
- Ohio Protection & Advocacy Association
- The Role of a “Medicaid Payback Trust” in
Personal Injury Awards Granted to Disabled Persons, by Janet Lowder,
et al, (1994, four page article in Ohio Lawyer)
- The Role of the Neurolawyer in Brain Injury
Case Management by attorney Nathaniel Fick (1990s, 4 page article on
TBI litigation and the goal of maximum improvement)
- Summary on Guardianship Law (no date, four page
outline summary from Hickman and Lowder)
- Summary on Wills and Trusts (no date, two page
outline summary from Hickman and Lowder)
- Special Needs Trust: A Brief Fact Sheet, by
William and Kate Dussault (no date, one page on basic provisions of
the law, eligibility, design and implementation)
- Survivor Life Plan
- Traumatic Brain Injury: Proving A Lifetime
Disability, by Richard Alexander (1995, four page article, from
www.alexanderlaw.com)
- Ten Questions the Family of a Head Injured
Person Should Ask Their Lawyer (no date, developed by the firm of
Hill, Peterson, Carper, Bee & Deitzler of Charleston, WV)
- The Master Trust
- Why Do I Need A Lawyer? (no date, one page list
of 13 issues a lawyer can address regarding TBI; writer is an attorney
on the board of the BIA of Maryland)
------
LEGISLATION
- A Good First Step Toward Nationwide Aid to
Persons with Brain Injury
- Olmstead and the ADA
- NICHCY: The IDEA Amendments of 1997
- The TBI Act Amendments of 2000 – Short Summary
- The TBI Act of 1996
- The Impact of Public Policy on Persons with TBI
------
MEDICAID
- Medicaid Services for TBI
------
MEDICARE/SSA
- Levels of SSA Appeal
- SSI/SSDI Information
- Supplemental Security Income
- Understanding the Social Security Disability
Insurance Program, by Carolyn Rocchio (2 pp., 1995, records,
qualifications, disability determination, appeals)
- What you should know about the Social Security
Disability Program, by Carolyn Rocchio (1997, 2 pp., from Family
News and Views)
- Win in Social Security Court: How you Qualify
(3 pp., September/October 1990, Cognitive Rehabil,)
------
MEDICAL
- Clinical Case Study: Intrathecal Baclofen
Therapy for Spasticity due to Brain Injury (2 pp., Brain Injury
Source, March 1999)
- Rebuilding the Brain: Cell Transplants Could
Lead to Revolutionary Cures (2 pp., Business Week, Feb. 8, 1999)
- Using Cold for Victims of Severe Head Injury
(one page, New York Times, May 29, 1996)
------
MENTAL HEALTH
- Clinical Depression and Brain Injury
- Coping with Post TBI Emotional Distress (4 pp.,
no date, from TBI Consumer Reports, RTC on Community Integration of
Individuals with TBI)
- Depression Following Traumatic Brain Injury,
Lauren L. Lerner, MD (1 page, from TBI Challenge, April 1998)
- Mental Illness & Head Injury, Bruce Hubbard, MD
(1 page, no date)
- Plain Talk About Depression (4 pp., 1994, NIMH,
Office of Scientific Information)
- The Role of Self-Esteem and Productive
Behavior, by David Strauss, PhD (1995, one page)
- What Type of psychiatric problems can a person
with brain injury experience? By Anthony B. Joseph, MD (Ask the Doctor
column, Brain Injury Source, Vol. 2, Issue 1)
------
MILD BRAIN INJURY
- Disability Management of Mild Head Injury
- General Article: Mild TBI, by Stephen S. Kalat,
PhD (1996, two page, from BIA of Colorado newsletter)
- Mild Head Injury and Fatigue (1995, one page
article from Maryland HIA newsletter)
- Mild Traumatic Brain Injury, by Randall W.
Evans, PhD (no date, brief one page definition and intervention)
- Minor Traumatic Brain Injury: A Life
Challenging Event, by Carolyn Rocchio, (1996, two page description)
- Minor TBI: A Mind Numbing Experience
- Neuropsychology and Mild TBI: Diagnosis vs.
Misdiagnosis, by Lloyd I. Cripe, PhD, (5 pp., 1990s, from i. e.
Magazine)
- Rehabilitation Following a Mild TBI: A Team
Approach (no date, reprinted with permission from i.e. Magazine)
------
NEURO- REHAB PSYCHOLOGY
- Neuropsychological Assessment: A Key Piece of
the Puzzle After TBI, by Carolyn Rocchio (1998, two-page, from BIA’s
Family News and Views)
- Neuropsychological Assessment: The Key to
Understanding Changes that Result from Brain Injury, by Carolyn
Rocchio (3 pp., TBI Challenge, Vol. 3, No. 3, 1999)
- Patient Information (2 pages, FAQs on
neuropsychological evaluations, from the website of the National
Academy of Neuropsychology,
www.nanonline.org no date, downloaded 2003)
- Referral Considerations: History & Symptoms
Checklist, by Regina Gunsett, PhD (early 90s, six-page outline on mild
BI symptoms, neuropsychological evaluation, and residual effects of BI
on daily functions such as relationships and organizational skills)
- What is a Neuropsychological Evaluation? (2001,
two page brochure downloaded from the website of the National Academy
of Neuropsychology,
www.nanonline.org)
------
PAIN MANAGEMENT
- Chronic Pain Management
- Post Traumatic Headaches: A Pain in the Brain,
by Nathan Zasler, MD, (no date, three pages)
- What is Pain Management and what is the Role of
a Pain Specialist? (July 1994, Today’s Columbus Woman)
------
PEDIATRIC BRAIN INJURY
- Children with TBI, by Ron Savage (2 pp., 1993,
article in TBI Challenge)
- FAQ’s about Behavior after BI, by Ron Savage &
Marilyn Lash (2 pp., no date, from Lash and Associates, downloaded
from www.lapublishing.com)
- FAQ’s about Speech & Communication after BI, by
Roberta DePompei, PhD, (2 pp., no date, Information Sheet from Lash &
Associates)
- FAQ’s about Brain Injury in Children, by
Marilyn Lash (2 pp., no date, answers about BI and special education)
- Helping Teens after Brain Injury (Tip Card,
Lash & Associates)
- Information for Emergency Departments: Mild
Brain Injury in Children, by Marilyn Lash (2 pp., 1995, about
long-term effects of brain injury, for parents after their child is
released from the ED)
- Legal Issues When Teenagers Become Adults after
Brain Injury (Tip Card, Lash & Associates)
- Meds after Brain Injury (Tip Card, Lash &
Associates)
- Minor Head Injury in Children - out of sight
but not out of mind, by Thomas J. Boll, PhD, (8 pp., NHIF 1984)
- Neurodevelopmental Disorders: Improving
Clinical Communication (2 pp., 1993, from Headlines, about
helping the family during and after diagnosis of head injury)
- Paving the Road to a Brighter Future when Your
Child has a Disability (2 pp., no date, brochure for parents on
transition steps)
- Pediatric Brain Injury: Behavioral Sequelae,
Michael P. Mozzoni, PhD (4 pp., no date, outlines deficits, management
strategies, needs of families)
- Pediatric Brain Injury Calls for Comprehensive
Care (one page, 1992, from Headlines)
- Pediatric Brain Injury May Last a Lifetime, by
Charles N. Simkins, Esq., (12 pp., no date)
- Reaching Challenging Kids: Neurobehavioral
Interventions (one page, 1992, from Headlines)
- RRTC Report on Pediatric Traumatic Brain Injury
(4 pp., 1990, from VCU, by Waaland, PhD, neuropsychologist)
- Setting up the Home when a Child has Complex
Medical Needs (Tip Card, Lash & Associates)
- This is Our Child…This is Your Client (1991,
three pages, improving the relationship between parents and
professionals)
- Through the Eyes of the Law: the Pediatric
Perspective (2 pp., 1994, i.e. Magazine, for parents addressing
the case of their child’s personal injury in civil court)
- The Unplanned Journey: When You Learn Your
Child Has A Disability (mid-90s, NICHCY publication, supporting
the family, gaining services, includes resources)
PEDIATRIC SAFETY
- Fact Sheet On The Relationship Between Head
Injury and Child Abuse (3 pp., no date)
- Important Information about Shaken Baby
Syndrome: A fact sheet for professionals (1999, from a New Hampshire
human services website)
- A Moment’s Rage, a Baby’s Life (6 pp., article
from 1997 Woman’s Day magazine, downloaded from sbs.com)
- Shaken Baby Syndrome Fact Sheet (1999, from BIA
of America website)
- Summertime: Time for Outdoor Fun...and Head
Injuries to Kids (2 pp., 1991, Rehab Update)
- Ten Things Parents of Children with Shaken Baby
Syndrome Want You to Know (2 pp., message from families to
professionals made at the 1996 National SBS conference, see
www.shakenbaby.com/frameset_library.htm )
------
PEOPLE FIRST
- Ten Do’s and Don’ts when You Meet a Person with
a Disability (1990, one page, reprinted by the Governor’s Council on
People with Disabilities)
- Do's & Don'ts with Disabilities
- People First Language Guide
- The Kids on the Block (a two page description
of this program for kids learning about disability, understanding the
nature of differences, and increasing awareness of safety and social
concerns. It uses puppets that represent disabilities, including brain
injury)
------
RECREATION (camps,
travel & leisure activities, sports
- Accessible Wildlife Recreation
- Brain Injury and Therapeutic Riding (1996,
3pp., Strides, Brain Injury Association of America)
- Leisure Education--A Step Toward Wellness
(1993, 11pp., Mary Beth Moore & Diane Kaiser)
- Sports for Disabled Individuals (1981, 2pp.,
Rehab Brief: Bringing Research into Effective Focus, Dept. of Ed.)
- Virtual Reality (1p., Thomson New Service,
Vicki Smith)
------
REHABILITATION
- 12 Communication Tips for Counseling People
with TBI
- Art & Brain Injury Recovery (2 pp., no date)
- Brain Injury and Therapeutic Riding (3 pp.,
from Strides, April 1996, medical considerations, literature
review)
- Cognition 101: The Basics, by Carolyn Rocchio
(one page, no date)
- Cognition? Perception? What do they mean for
families of brain-injured patients (4 pp., No date, perceptual and
cognitive deficits)
- Cognitive Rehabilitation (2 pp., 1996,
compensatory strategies)
- Cognitive Rehabilitation - Questions & Answers
- Community Re-Entry Following Traumatic Brain
Injury
- Complex People, by Harvey E. Jacobs (3 pp.,
1993, excerpted from H.E. Jacobs, Behavior Analysis and Brain
Injury Rehabilitation: People, Principles, and Programs)
- Integration by Inclusion: Bridging the Gap
Between the Rehab Facility and Home, (4 pp., 1996, from Disability
Today)
- Living With Head Injury: Post-Rehabilitation
Recovery, by Judith Falconer (4 pp., 1990)
- National Institutes of Health (NIH) Consensus
Development Conference Statement on Rehabilitation of Persons with TBI
(Oct. 26-28, 1998)
- Preparing Patients & Families for the
Rehabilitation Process (no date, needs of families in the course of
rehab)
- Quality Community Integration after Traumatic
Brain Injury, by John Corrigan (4 pp., no date)
- Recovering from Head Injury: a Continual
Process, by Judith Falconer (1990)
- Restructuring Self-Esteem After Brain Injury,
by Stanley Seaton, MD, (no date, one page)
- The Role of Music and Music Therapy in the
Rehabilitation of Traumatically Brain Injured Clients, (18 pp., no
date, by M. Susan Claeys, Rebound, Inc., Tennessee)
- The Silent Epidemic: Rehabs of People with
Traumatic Brain Injury (4 pp., no date, from Rehab Brief, Vol.
IX, No. 4, types of injury, functional effects, interventions, factors
in improvement, concerns in vocational rehabilitation)
- Some Facts About Music Therapy (7 pp., no date)
- Structure, Structure…Everywhere, by Heike
Kessler-Heiberg, SLP (2 pp., from San Diego Head Injury Foundation
newsletter, February 1993)
- A TBI Survivor Talks to Professionals (3 pp.,
1991, rapport, learning, communication, do’s and don’ts)
- A Team Effort, Who's Who Along the Rehab
Continuum (5 pp., 1996, magazine article from Disability Today
- the final paragraph appears to be incomplete as the article ends in
the middle of a sentence due to an apparent editing error)
- Understanding and Treating Perseveration in
Brain Injury Rehabilitation, by Lennard Shangi, PhD (7 pp., from
Brain Injury Source, Vol. 1, Issue 1, Fall 1997)
- Utilizing a Rational Behavior Therapy Approach
in Brain Injury Rehabilitation, by Stanley Seaton, MD (1995, one-page
article in the newsletter (four pages) Viewpoints: Issues in Brain
Injury Rehabilitation, Summer 1995, published by Tangram
Rehabilitation Network)
- What is Cognitive Rehabilitation, by Julie
Schlanger (one page, no date)
- The Whatever It Takes Model (WIT) (2 pp., no
date, from Barry Willer, RRTC on Community Integration, Univ. of
Buffalo)
------
SEIZURE DISORDER/EPILEPSY
- Detection & Management of Seizure Disorders:
The Role of Behavior Observation, by Judith Falconer, PhD (1990,
five-pages)
- Epilepsy and the School…Age Child (no date, six
page article on psychological, social, medical aspects, responsibility
of school staff, and record-keeping)
- Epilepsy as a Consequence of Brain Injury, by
Carolyn Rocchio (no date, two-page article covers types of epilepsy,
diagnosis, and control)
- Head Trauma & Epilepsy
- Post Traumatic Seizures…Following Brain Injury,
by Nathan D. Zasler, MD (1991, four-page special topic report from VCU
commenting on definitions, incidence, prognosis, risk factors)
- Post Traumatic Seizure Disorder, by Susan H.
Pierson, MD (1994, two-page overview of seizure types, causes, safety
procedures, treatment)
- Epilepsy: Some Basic Facts (no date, no author,
three-page fact sheet)
------
SEXUALITY
- Adolescents with Brain Injury: Issues of
Sexuality (3 pp., 1994, article in i.e. Magazine)
- Coping with Sexual Problems after TBI (no date,
TBI Consumer Report #5, reports interview results compiled by
the Research and Training Center on Community Integration of
Individuals with TBI)
- Evaluating Birth Control for Adults with
Traumatic Brain Injury, by Paul R. Sachs, PhD, (one page article,
TBI Challenge, Fall 1993)
- Massachusetts Rehab Comm., Sexuality Committee
Rediscovering Intimacy, by W.F. Blackerby, PhD (4 pp., article, TBI
Challenge, Fall 1993)
- Sexuality after a Person Has a Brain Injury, by
David Strauss, PhD (Tip Card, Lash & Associates)
- Sexuality is a Family Matter, by Carolyn
Rocchio (2 pp., 1997, article in Family News and Views)
- Talk of Sex and Feelings Part of Recovery
Process, by David Strauss, PhD (2 pp., 1996, reprinted with permission
from Connections, Vol. 3, No. 1)
------
SPORTS AND BRAIN INJURY
- Articles (miscellaneous)
- Contact Sports and Concussion (2003, “keep up
the competition, but take every concussion seriously,” downloaded
March 4, 2003 from www.msnbc.com,
two page summary from a transcript of Q&A interview with researcher
Dr. Michael Collins on the impact of concussion in kids)
- Giant Steps, (June 14, 1999, People Weekly,
four-page article about ex-Detroit Lion Mike Utley, paralyzed in 1991
after falling on his head, suffering a spinal cord injury, and his
work to regain function and feeling)
- Link Demonstrated between multiple concussions
and neuropsychological deficits in college athletes, (one-page article
in Inside View, 9.1 2000, Centre for NeuroSkills)
- Traumatic Brain Injury and Concussion in
Sports, James P. Kelly, MD, (3 pp., article, JAMA, Sept. 8,
1999)
- Traumatic Brain Injury in High School Athletes,
John W. Powell et al, PhD, (6 pp., article, JAMA, Sept. 8,
1999)
------
STATISTICS
- Brain Injury: An Estimated 5.3 Million
Americans… (2 pp., BIAA fact sheet, 2001, defines TBI, ABI, incidence,
disability, causes, consequences that are cognitive, physical, and
emotional)
- Brain Injury Incidence and Prevalence (one-page
fact sheet from BIAA, 2000)
- Epidemiology of TBI in the US (late 90s, CDC
Report on incidence, causes, disability, trends, outcomes, and public
health surveillance, downloaded from cdc.gov/ncipc)
- Public Spending on TBI (one-page fact sheet
downloaded from BIAA, dated June 2000)
- TBI Data Summary (one page, taken from Ohio
Legal Rights Service brochure: A Typical Day in the USA, August 12,
1999)
- TBI in the US: A Report to Congress (22 pp.,
Dec. 1999 report downloaded from cdc.gov/ncipc summarizing current
knowledge about incidence, causes, severity, associated disabilities,
and prevalence of TBI)
- TBI Versus… A Comparison of TBI and Leading
Injuries or Diseases (2 pp., 2001, BIAA fact sheet)
- A Typical Day in the USA, August 12, 1999,
facts about Brain Injury (4 pp., 1999 Ohio Legal Rights Service
brochure shows numbers of Ohioans and Americans affected by TBI)
------
STRESS
- The Art of Relaxation (1983, 1p., U.S. Dept. of
Health and Human Services)
- Coping with Long-Term Stress (1p., Excerpts
from Colorado HIF Newsletters)
- Handling Stress (1991, 1p., Plain Talk Series,
U.S. Dept. of Health and Human Services)
- Manage Stress more Effectively (no date, two
pages, selected text from Getting Better (and better) After Brain
Injury/A Guide for Family, Friends, and Caregivers--25 Ideas for
Living Smarter and Happier, on-line version. Downloaded August 5,
2003 from The National Resource Center for TBI)
- The Relaxation Response: A Viable Approach to
Stress Reduction
- Stress Management Following Head Injury
------
SUBSTANCE ABUSE
- Alcohol, Head Injury and Neuropsychological
Function (four authors, 1992, Neuropsychology Review, vol. 3,
No. 3)
- Alcohol Is An Insidious Drug, by Maria Johnson
(1994, 4 pp.)
- Alcohol & Other Drugs Can Be Harmful After Head
Injury (no date, no author, 5 pp., charts listing specific drugs,
their effects, and symptoms of abuse and a chart showing possible
effects in common between TBI and drug or alcohol use)
- Beliefs & Attitudes Questionnaire (2 pp., no
date, no author)
- Chemical Abuse in Head Injury, by J. Falconer &
E. Tercilla (1990, 8 pp.)
- Did I Mention the Teeth? by J. Bogner, G.
Lamb-Hart (4pp., i.e. Magazine, Vol. 3 (1), 1995, a publication
of the Ontario Head Injury Association [no longer being published])
- Enabling: When Helping is Not Helping (fact
sheet, 1 pp., Source: Dateline DREAM, October/November 1995)
- Head Injury & Alcohol – A Bad Mix, by Francis
R. Sparadeo, PhD (1 pp. 1990, printed in the Maryland Head Injury
Foundation Newsletter, vol. 8, no. 1)
- A Look at Alcohol & Other Drug Abuse Prevention
and ... Symptoms Checklist (2 pp. No date, no author, produced by the
Resource Center on Substance Abuse Prevention and Disability)
- A Look at Alcohol & Other Drug Abuse Prevention
and...Traumatic Brain Injury (4 pp. No date, no author, produced by
the Resource Center on Substance Abuse Prevention and Disability)
- A Model of How People Change: Stages and
Processes of Change (no date, no author, 6 pp., describes stages and
processes of change that apply to addictive behaviors, interventions,
case example from 1991-92)
- An Overview of Substance Abuse and Brain
Injury, by David Strauss, PhD, (2001, 6 pp., from Brain Injury
Source, vol. 5, issue 4, addresses brain injury and SA, rehab,
re-entry, treatment suggestions)
- The Relationship between TBI & Substance Abuse
(no date, no author, 2 pp., basic fact sheet about effects of TBI on
SA risks, inherent challenges in treatment of the dual diagnosis
client)
- Some Facts Regarding Substance Abuse (no date,
no author, 2 pp., basic fact sheet on SA risks for those with TBI,
showing need for SA screening in acute settings when a TBI is
diagnosed)
- A Substance Abuse Program for Head Injury
Survivors, by Bill Peterman (no date, 4 pp., outlines methods and
adaptations used to treat SA with TBI)
- What Rehabilitation Professionals Need to Know
about Substance Abuse (9 pp., no date, no author, addresses
implications for prevention and treatment, symptoms checklist
indicating problems, screening for use questionnaire, effects of used
substances)
- What Substance Abuse Professionals Need To Know
About T.B.I. (no date, no author, 5 pp., describes causes, mechanisms,
recovery, and deficits of TBI with SA complications, provides a brief
screening tool)
Information about the Substance Abuse / TBI Problem:
1. TBI Workshops, Alcohol and Traumatic Brain Injury, Why Alcohol is
Dangerous After TBI. (no date, one page, handout from 2003 training,
Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency Program)
2. Substance Use and Abuse after Brain Injury: A Programmer’s Guide.
(1997, Ohio Valley Center, Source: handout from 2003 training)
Screening Tools:
3. Problem Substance Abuse (defines Substance Dependence and Substance
Abuse) Source: handout from training (Corrigan, Lamb-Hart)
4. How to tell if you Have a Problem with Alcohol (brochure). (Source:
handout from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult
Chemical Dependency Program)
5. What Is Post Acute Withdrawal? (1 page) (Source: handout from 2003
training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency
Program)
6. Short Michigan Alcohol Screening Test (1 page) (Source: handout
from 2003 training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical
Dependency Program)
7. Michigan Alcohol Screening Test (M.A.S.T.) (1 page with answer key)
(Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital
/ Adult Chemical Dependency Program)
8. SASSI-3, Substance Abuse Subtle Screening Inventory (diagnostic
survey form with scale / rating information), Basic Notes for
Understanding the SASSI Scales, DSM-IV Information on Substance Use
Disorders, (Source: handout from 2003 training, Donna Pleli, Edwin
Shaw Hospital / Adult Chemical Dependency Program)
Treatment Suggestions:
1. Suggestions for Substance Abuse Treatment Providers Working With
Persons Who Have Limitations in Cognitive Abilities. Source: handout
from training (Corrigan, Lamb-Hart)
2. State Dependent Memory (1 page) (Source: handout from 2003
training, Donna Pleli, Edwin Shaw Hospital / Adult Chemical Dependency
Program)
Screening / Treatment Combination:
1. Utilities for Community Professionals: Brain Injury and Substance
Abuse (1998, Ohio Valley Center), tools for faster, more reliable
operation of a brain after injury. Booklets in the series include:
- Whatever It Takes: 10 principles for community
professionals helping persons with brain injury.
- ABUSE Screening: How to screen for substance
abuse among persons with brain injury.
- TBI Screening: How to screen for traumatic
brain injury.
- Stages of Change: How people change addictive
behavior and what supports the change process.
- Motivational Interviewing: A counseling
technique to help people make difficult changes.
- Community Teams: How community professionals
can work together collaboratively.
Materials for Consumers:
1. User’s Manual, For Faster...More Reliable Operation of a Brain
after Injury. (1997, Ohio Valley Center, Source: handout from 2003
training)
Resources for SA/TBI Speakers (PowerPoint presentations):
1. Substance Abuse and Traumatic Brain Injury presentation printout
(Source: handout from 2003 training, Donna Pleli, Edwin Shaw Hospital
/ Adult Chemical Dependency Program)
2. Scope of the Problem, TBI “101” presentation printout (Source:
handout from 2003 training, Dr. Corrigan, OVC)
3. Substance Abuse “101” presentation printout, (Source: handout from
2003 training, Gary Lamb-Hart, OVC)
------
SUPPORT GROUPS
- Brain Injury Support Groups: Services for
Children & Adolescents (7 pp., J of Cognitive Rehabil,
Nov/Dec 1994)
- Can We Make A Difference? Greater Need for
Self-Help in an Era of Managed Care (2 pp., 1995)
- A Guide for Developing a Successful Brain
Injury Support Group
- Guidelines for Developing Support Groups (2
pp., 1986, purpose, objectives, composition, leadership in a brain
injury group)
- Practical Guidelines for I&R (one page, 1994,
from NHIF Family Advisory Council)
- Start Up Packet (information on starting a new
support group)
- Support Systems Improve Quality of Life for
All, Carolyn Rocchio (2 pp., 1996)
- What is a Brain injury Support Group (2 pp., no
date, FAQs on use of the BI group)
------
SURVIVOR
- 10 Tips for a Better Memory
- Barriers to Optimal Quality of Life
- Community Building Roles for Connections
- Consider the Lilies of the Field: How They Grow
- Empowerment
- Empowerment - The Real Thing
- Friends: A Manual for Connecting Persons
with Disabilities and Community Members, Angela N. Amado et al,
(1990, 80 pages)
- Friendship As A Safe Harbor
- Hitching a Ride on the Road to Recovery
- Leisure Time Planning
- Myths Are The Greatest Barriers
- Pets: A Motivational Tool for TBI
- Positive Attitude Tips
- Restructuring Self-Esteem
- Tips for the Person with a Head Injury
- Turn Off the TV and Tune Into Life
- Unobvious Disabilities
- What Does It Feel Like To Be Brain Damaged? By
Frederick R. Linge, Clinical Psychol, Mental Health Centre, Penicton,
British Columbia (no date, eight pages)
- When A Disability Makes You Feel Left Out
------
TBI (General)
- Ask the Doctor: Anoxic Brain Injury (6 pp., by
Nathan D. Zasler, in Brain Injury Source, Vol. 3, Issue 3,
includes a bibliography)
- The Brain--How It Works and How It's Injured (3
pp., brief overview, no date)
- Brain Region Functions and Changes after Injury
(3 pp., adapted from Robert P. Lehr, PhD, Brain Functions & Map
article at www.neuroskills.com,
downloaded July 18, 2002)
- Cognition is the Key to the Way We Think and
Act, by Carolyn Rocchio (2000)
- Defining Brain Injury (1997) (Official BIAA
definitions - Acquired BI and Traumatic BI)
- Effects of Injury to Specific Brain Regions (4
pp., adapted from Robert P. Lehr, PhD, Brain Functions & Map
article at www.neuroskills.com,
downloaded July 19, 2002)
- Fact Sheet: Hypoxic-Anoxic Brain Injury (7 pp.,
downloaded 10/8/98, Family Caregiver Alliance site)
- How To Relate To A Head Injured Person , by
Mark D. Mitchell (9 pp., 1988)
- Traumatic Brain Injury Facts: An Overview (2
pp., no date, pdf from www.nashia.org)
- Traumatic Brain Injury Facts: Emergency Medical
Services, (2 pp., no date, pdf from
www.nashia.org)
- The Unvarnished Truth – There is no cure for
brain injury, Carolyn Rocchio (3 pp., 1998)
- What Are The Characteristics Of Persons Who
Have Survived Head Injuries? (1 p., no date, a simple listing)
- What Is Anoxic Brain Injury, David F. Long, MD
(4 pp., 1990)
- What to Expect after TBI, by Tom Novack, PhD,
(9 pp., from the Recovery after TBI Conference, Sept, 1999)
------
TRANSPORTATION
- Catering to Travelers Who Have Disabilities
- Driving After Brain Injury
- Driving After Brain Injury Evaluation
- Epilepsy and Driving
- Preferred Practices To Keep In Mind As You
Encounter Guests Who Have Disabilities
- Preserving the Past & Making It Accessible
- Special Needs Travel
------
VISION AND HEARING (post injury)
- Head Injury Causing Post-Trauma Vision Syndrome
- How Does Brain Injury Affect Vision &
Perception (early 90s, 1 pp., Q & A from Headlights, Hillside
Rehab Hospital)
- Hyperacusis
------
VOCATIONAL
-
Back to Work? Options after a neurological disability (Tip Card, Lash
& Associates)
-
The High Cost of A Bump on the Head (no date, two-page article on
components of worksite head injury programs, facts and guidelines for
employers, reprinted from Business and Health)
-
It Pays to Work…A guide to help people on SSI and SSDI decide about
employment (old booklet from COVA)
-
Milestones to Employment (1999, a very brief “tip card” from
Cincinnati agency for youth with disabilities who receive transition
services)
-
Reaching Out with Few Supports (mid 90s article, post injury
complications and return to work issues, Maryland legislative efforts
to address problems)
-
Rejoining the Workforce: There are no simple solutions. (no date,
two-page article reprinted from TBI Challenge, by Robert T.
Frazer, PhD, Professor of Neurology, Univ. of Washington)
-
Some Ideas to Keep in Mind when Working with a Person Disabled by a
Head Injury (1990, one page, Craig Hospital, Dept. of Speech-Language
Pathology)
-
Structuring Jobs for Persons with Head Injuries (no date, brief one
page article)
-
Thinking About Work: Services that Can Help (Tip Card, Lash &
Associates)
-
Tips for Seeking & Keeping a New Job (no date, one page brief list for
seeking and maintaining a job, self-eval, and worksite eval ideas)
-
Vocational Rehabilitation Issues for Youth (1992, two page article
from newsletter for TBI professionals from VCU on long term rehab
needs of people with severe TBI)
-
Work Readiness after TBI (1995, from NHIF Family News and Views
two page article)
-
Work Site Accommodations (no date, brief one page article, types of
accommodations for various cognitive disabilities—LD, MR, TBI)
-
Working Effectively with Employees Who Have Sustained a Brain Injury
(1994, 3 pages, from Program on Employment and Disability, Cornell
Univ. job training, productivity, accommodation, ADA implications for
those with TBI).
-
Working Effectively with Persons Who Have Cognitive Disabilities
(1999, from Janweb site, considerations in accommodating cognitive
disability – aimed at employers, job coaches, etc,.)
*Under each category there is an additional Miscellaneous File
which contains originals of infrequently used information.
Filename:
FRED List to Website.doc
Revised March 23,
2004
|